It's hard to believe it is over a year since I have written here. We have so many reasons to rejoice! Sam and Grant were married last December and very soon she graduates from university. Despite her many setbacks she has persevered, completed two teaching pracs and gained many high distinctions. Last week she had her interview with the Department of Education and the interviewer (a retired principal) said he wished she could teach his grandson. He was so impressed with her resilience.We are so proud of who she is and all she has achieved but mostly of her tremendous ability to keep smiling through this all.
Sam continues to receive treatment for her eyes, having regular visits to the Professor of Opthamology at St Vincents Hospital. After a year on various treatments we have reverted to her donating her own blood and having it converted to frozen plasma eye drops. This is not an ideal solution but it eases the GVHD in her eyes a little.
We also continue to see an ENT specialist regarding her ears which are still showing signs of chronic GVHD and a thickening of her ear drum. It is opaque rather than clear, full of fluid and sometimes she has awful discharge. She continues to use ear drops everyday and one day we hope this will 'run it's course.'
She also has blackening of the skin, lots of small bruises around and under her arms.
I write today because we would really appreciate your prayers. Since July this year Sam has had increasing problems with her joints, with cramps in her hands, feet, legs, stomach and arms. More recently her skin has become very tight around her ankles and her ankle joints are locked making walking extremely difficult and painful. She had a nasty fall at university last week and came home with cuts all over her legs.
We saw her Haemotologist today and he said she has developed a late, chronic GVHD which sometimes occurs from the knees down. Sadly, after having been weaned off all immunosuppressants for the last six months and some for over a year she is back on Cellcept and Cyclosporin. Her prednisione dose has been multiplied again.
- That her body responds quickly to the increased drugs getting movement back in her ankles
- That she is relieved from painful cramps
- That her eyes begin to heal, producing natural tear drops so the blood drops can be stopped
- That her eyes will become clear and the environment normal
- For her skin to heal
- For continued strength as she perseveres amidst all these setbacks
- Please thank God with us for the miraculous provison of donor cells that saved her life
- But most of all her body will accept the donor cells so that the battle within her body would stop.
Thanks for continuing with us in faith for almost 4 years now. We are very grateful to be a part of a community of praying friends.
"Passing through the valley of Baca they make it a place of springs; the early rain also covers it with blessings."Psalm 84:6